Patient Resources

Reliable information can help patients and families discuss screening, treatment, clinical trials, and supportive care with their healthcare professionals.

The resources below include U.S. government agencies, clinical-trial registries, and established patient organizations. Atossa does not provide individual medical advice, and information on this website is not a substitute for consultation with a qualified healthcare professional.

Clinical Research and Expanded Access

ClinicalTrials.gov
Searchable registry of clinical studies.
https://clinicaltrials.gov/

FDA Expanded Access Information for Patients
Explains eligibility, process, potential costs, and the treating physician’s role.
https://www.fda.gov/news-events/expanded-access/expanded-access-information-patients

Expanded Access Navigator
Guidance for patients and caregivers considering clinical trials or expanded access.
https://navigator.reaganudall.org/patients-and-caregivers

Understanding Risk & Staying Informed

Breast cancer risk is influenced by a range of factors, some modifiable, others not.

Nonmodifiable factors are those that cannot be changed, including family history, inherited genetic mutations such as BRCA1/2, and age and breast density, all of which can contribute to increased risk.

Modifiable factors are those that can be altered to lower risk, including habits and lifestyle factors such as alcohol consumption, physical activity, or excess body weight.

Staying informed and engaged with your healthcare provider is key.

Conversations around screening, such as when to begin mammograms or whether additional imaging may be appropriate, can help ensure a plan that reflects your individual risk.

Screening & Early Identification

Regular screening plays an important role in identifying changes in breast tissue, often before symptoms appear.

For individuals at elevated risk, care teams may recommend more tailored approaches, including supplemental imaging or endocrine-based risk management strategies. Established therapies, such as tamoxifen, have demonstrated benefit in certain settings, though treatment decisions are highly individualized. For individuals at elevated risk, care teams may recommend more tailored approaches, including supplemental imaging or endocrine-based risk management strategies. Risk-reducing endocrine therapy is an established option for certain appropriately selected individuals and should be discussed with a clinician.

Navigating Diagnosis & Ongoing Care

A breast cancer diagnosis brings a range of decisions, from initial diagnosis, individual treatment and long-term management.

Care may include surgery, chemotherapy and biologic treatments, radiation, and endocrine therapy, depending on the type of breast cancer and extent of disease. Following initial treatment, ongoing therapy and monitoring may be recommended to help manage risk over time.

Support resources including counseling, nutrition guidance, and survivorship programs can all play an important role throughout this process. Staying connected to your care team and trusted information sources can help you navigate each step with clarity and confidence.

Patient Resources for Families Living with Rare Diseases

If your family is living with a rare disease, finding reliable information and support can make a meaningful difference. You are not alone, and there are many resources available which help connect patients, caregivers, and families with trusted organizations offering disease education, caregiver support, peer communities, advocacy opportunities, clinical trial information, and practical resources to help navigate the rare disease journey. Whether you are newly diagnosed or seeking additional support, these resources can help you make informed decisions, connect with others facing similar challenges, and learn about research opportunities—all while working closely with your healthcare team.